CRPS Inside Out

Wearing Crocs:E18

Mon, 22 Feb 2021 23:02:55 +0000

I never thought I’d wear Crocs. Before being diagnosed with CRPS I loved shoes, especially boots. I loved boots because I used to ride my horse and my motorcycle. I lived for riding, going fast, splitting the sky with hair blowing around my face. Now, I wear Crocs. I get a rare horseback ride walking slowly while wearing boots three sizes too big. No more motorcycle. No more wind blowing through my hair. Just Crocs.

Forgetting Meds: E17

Wed, 27 Jan 2021 02:01:39 +0000

Do you ever forget your meds? I do, and oh, my goodness, the pain. I don't have a caregiver to remind me, and my alarms aren't doing it for me when I'm not feeling well or didn't get enough sleep the night before. What about you?

Distractions: E16

Thu, 09 Apr 2020 17:19:58 +0000

CRPS pain is no joke and we must find positive ways to cope. Using distractions is a great way to do just that. In this episode Jana discusses various ways to fight the pain and find meaning in life. Without meaning CRPS can live up to its nickname “The Suicide Disease.” Let’s work together to change that.

The Chicken & the Egg: E15

Wed, 08 Apr 2020 16:42:38 +0000

Dealing with CRPS is hard enough without adding other illnesses and disorders. The complexity of CRPS becomes even more complex. It’s hard to separate the symptoms from one disease to another. And that causes anxiety and frustration.

Feeling Sicker: E14

Fri, 06 Mar 2020 17:11:56 +0000

I just received several new diagnosis and I’m having a tough time processing this new information about my health. I now, once again, must change my daily habits regarding food as medicine and exercise routine. Frankly, I think I just need to go for a “walk” which means making sure my wheelchair is charged.

Identity Theft: E13

Sun, 02 Feb 2020 21:00:24 +0000

CRPS has stolen my identity. I never imagined that CRPS, POTS, PNES, DID, et al. could change me so much—and not in a good way.

Emotional: E12

Thu, 30 Jan 2020 19:37:14 +0000

Feeling sad about not podcasting in a while… Plus, I’ve been a mess emotionally. The diagnosis of PNES has really thrown me for a loop because it’s psychologically driven. PNES is a physical manifestation of past trauma from childhood. So, I’ve been working to resolve stress in my life and get on-board with some therapy. Easier said than done.

Distraction: E11

Sun, 18 Aug 2019 14:14:12 +0000

Distraction can be a bad thing because it can keep us from our responsibilities. It can also be a great thing for pain management. In this episode, I talk about the various ways I use distraction in my life and how it impacts me.

Extremely Raw & PNES: E10

Thu, 06 Jun 2019 04:49:06 +0000

You see, I’ve had a secret and here it is… I have been blaming my current illnesses on my body, or at times on God when the reality is that I know I haven’t dealt with a lot of trauma in my life. I have pretended that everything is okay and that I’m past all the emotional pain. I have pushed on in a highly functional way at the cost of my physical health. I have known that psychological brokenness internalized continues to manifest as dis-ease in my body.

Hopeless to Hopeful: E9

Mon, 03 Jun 2019 07:45:56 +0000

Things Do Get Better: It was a rough day and I was starting to feel hopeless about my future with CRPS, POTS, and Fibromyalgia. But my friend dragged me to a worship service, and everything changed. I could barely stay and was in a lot of pain when I got honest about my feelings and spent a short amount of time praising God for all He has given me, and my attitude changed.

Feelings of Body Failure: E8

Sat, 01 Jun 2019 04:56:27 +0000

Have you ever felt like your body was failing you? It’s difficult to say out loud, but hey, this is my life and I’m truly doing the very best I can as I fight these dis-eases. I want my miracle… any day now would work for me. Invisible Disabilities and Illnesses are real and they are crazy-hard to live with.

I Miss My Horse: E7

Mon, 27 May 2019 04:57:45 +0000

Not being able to ride or see my horse in way too long has really affected me emotionally. Riding was my favorite outlet for stress and without it, I’m struggling. My horse’s name is Remington and he is amazing. He is the best of all my past horses rolled into one. I hope to be able to see him again soon.

Housebound: E6

Sun, 19 May 2019 19:00:09 +0000

I never knew there was such a thing as being housebound until I got more ill in the past several years. I’ve learned a lot about myself, my family and my friends. I’ve learned that I need community. I need to engage with others on very personal levels which keeps me safe and sane.

Creativity & Pain: E5

Wed, 15 May 2019 20:52:18 +0000

The Creative Spirit flows like an impregnated wind of love and passion. We have access to this Spirit from God. No matter what creative outlet, no matter what perspective you are coming from, you have access to the Creative Spirit. That is if you are human.

A New Beginning: E4

Fri, 10 May 2019 18:28:30 +0000

Dreaming again is what I’m looking forward to the most in this new season of my life. I want to get back to a place where living one day at a time still has hope for a future. I use creativity and my sanctified imagination to co-create with Jesus and you can too.

Raw Emotions & Handling it All: E3

Wed, 08 May 2019 02:27:21 +0000

A lot is happening all at once and my emotions are pretty raw. The beauty is that my emotions don’t define who I am. They are merely a tool to use in life. They are a measurement. They are a bridge to action and reaction that is healthy and godly. And they are going to help me deal with my life tomorrow.

Bad News & Creativity: E2

Sat, 04 May 2019 00:07:02 +0000

Everyone gets bad news, but the good news is that everyone is creative. We are all capable of using creativity to pull ourselves out of bad moods from bad news. CRPS can either destroy us or make us the strongest people in the world. I choose strength.

Errands & Expectations: E1

Thu, 02 May 2019 05:10:54 +0000

Sometimes the things we take for granted are things we miss the most where CRPS is involved. In this episode I talk about an embarrassing fall and how much I loved running errands. There’s always hope when dealing with challenging situations—it’s just a matter of finding it.

Introduction

Mon, 29 Apr 2019 23:36:21 +0000

Living with CRPS is a very difficult task. It has been dubbed "the suicide disease" and trust me when I say it has earned that title. This Podcast is meant to help me through my story one day at a time.